Join us for #GRICON2024 Virtual

GRI Conference 2024 brings together GRI families, researchers, clinicians and industry representatives from around the world to learn, collaborate and network. 

Who should attend? 

• Families. Learn from leading researchers doctors and scientists. 

• Researchers and clinicians. Learn from your peers in the advanced track. Connect with new collaboration partners in universities, hospitals and biotech. 

• Industry. Learn about GRI Disorder and the unmet need for pharmaceuticals and genetic medicines. 

Registration for the Virtual Conference is Pay What You Can

Our suggested ticket price is $79 per person / household, but we don't want anyone to miss out because of cost.  Whatever your connection to GRI Disorder, feel free to register for free or "Pay What You Can" a lower amount. And if you have the means to pay more, we appreciate that too!

8:30 - 9:30am ET:  GRI Community Networking Event

Hosted by Lauren Williams, CureGRIN Foundation and Presented by GRIN Therapeutics

9:30am- 10:00am

Welcome and Update on the Search for Treatments and Cures

Keith McArthur, CureGRIN Foundation

10:00am- 11:00am

GRISpeaks: GRI families share their experiences 

Patty Sanders (GRIA3), Kristina McKean (GRIN1), Laura Williams (GRIN1)

Moderated by Denise Rehner, CureGRIN Foundation

11:00am- 11:05am- Break

11:05am- 12:05pm- Breakout Session 1 

Neurostorms: Autonomic Dysfunction and Paroxysmal Sympathetic Hyperactivity

Presented by GRIN Therapeutics

Dr. Keith Coffman, Children's Mercy Hospital, Kansas City, Missouri

Moderated by Keith McArthur, CureGRIN Foundation

Research Talks: Brain Donation and Mortality Study

Dr. Carolyn Komich Hare, Autism BrainNet's Clinical Director, Simons Foundation

Meagan Hutchinson, Research Coordinator, CureGRIN Foundation 

12:05pm-12:10pm- Break

12:10pm- 1:10pm- Breakout Session 2 

GRI Animal Models and Gene Therapy 

Dr. Amy Ramsey, University of Toronto and Dr. Wayne Frankel, Columbia University

GRI Medicine Cabinet and Therapies 

Dr. Lisa Belderes, and Dr. Kristen Park, MD Children's Hospital Colorado 

1:10pm-1:15pm- Break

1:15pm- 2:15pm- Breakout Session 3 

Insights from GRI Clinical Trials 

Dr. Michael Panzara , Chief Medical Officer,  Neurvati Neuroscience (GRIN Therapeutics) and Dr. Ángeles García-Cazorla, Children's Hospital in Barcelona. 

Family Talks: Advocacy and Fundraising 

Dr. Danielle Boyce, Tufts University Biomedical Health Data Science Collaborative (BHDSC) and Johns Hopkins University School of Medicine Faculty

2:15pm- 2:20pm- Break

2:20pm- 3:20pm- Keynote 2 Registries and GRI disorder phenotypes 

Presented by GRIN Therapeutics

Dr. Tim Benke,Children’s Hospital of Colorado,  Dr. Wendy Chung,Chief of Pediatrics at Boston Children's Hospital and Dr. Allan Bayat, Filadelfia Epilepsy Hospital in Denmark

Moderated by Meagan Hutchinson, CureGRIN Foundation

3:20pm-3:25pm-Break

3:25pm- 4:50pm- Keynote 3: 

Research Update on CureGRIN-funded Projects 

Dr. Dennis Lal, UTHealth Houston, Dr. Steve Traynelis, CFERV at Emory University, Dr. Wayne Frankel, Columbia University, Dr. Tristan Sands, Columbia University, Dr. Amy Ramsey, University of Toronto, Dr. Maggie Kalev, University of Auckland , Dr. Derek Bowie, McGill University and Dr. Ian Coombs, University College London

Moderated by Meagan Hutchinson, CureGRIN Foundation

4:50pm- 5:30pm- Ask Me Anything

Dr. Amy Ramsey, University of Toronto, Dr. Johannes Lemke, University of Leipzig, Germany, Dr.  Ian Coombs, University College London, Dr. Keith Coffman, Children's Mercy Hospital, Kansas City, Missouri

5:30pm - 5:50 GRI Community Impact Awards

5:50 - 6:00 Closing Remarks