Join Get Moving for GRI in New Jersey!

We are so excited to announce we will be hosting a fundraising walk at North Brunswick Community Park in North Brunswick Township, New Jersey on Sunday, June 25^th at 9:30 AM. 

Registration for the walk is $30 and all proceeds from the walk will go directly to the CureGRIN Foundation. Register as soon as possible if you are ordering a t-shirt and would like to wear it the day of the event. If not, registration will be open until the day of the event. 

 

If you would like to purchase t-shirts please use the links below:

Click here to purchase kid's shirts. 

Click here to purchase additional adult shirts. 

We would like to thank our amazing sponsors, Garden Farm Market for donating delicious fruits for our registrants, and Bagel Boys and Deli for donating bagels for us to enjoy for breakfast!

If you can’t make the walk, we would still really appreciate your support through a donation! Donations can be made by clicking the orange “Can’t make it? Donate!” button. Your donation and/or registration helps to fund research to find a treatment and one day a cure for people living GRI Disorder. Our families believe in this foundation so much and we really appreciate your contribution and support!

Additional details about the location can be found here!

 

Where does your donated money go?

 

CureGRIN Foundation invested a total of $652,500 in five research projects this year! These projects focus on gene therapy, testing drugs for GRIN and GRIA Disorders, identifying biomarkers, and using predictive modeling to better understand each variant.

Research projects include:

·        Dr. Wayne Frankel, Columbia University: “RNAi Therapy in a Mouse Model of GRIN2A Developmental and Epileptic Encephalopathy” 

·        Dr. Ian Coombs & Dr. Mark Farrant, University College London: “AMPAR PAMs as potential precision therapies for GRIA loss-of-function”

·        Dr. Derek Bowie, McGill University: “Combination therapy for the treatment of GRIN disorders”

·        Dr. Maggie Kalev, University of Auckland & Dr. Amy Ramsey, University of Toronto: “Blood cells as the source of potential biomarkers for GRIN disorders”  

·        Dr. Dennis Lal, University of Texas & Dr. Steve Traynelis, Emory University: “GRI gene variant pathogenicity & function prediction models for enhanced genetic test interpretation and patient selection for clinical trials”

This investment could not have been possible without the support from hundreds of GRI families who have donated and / or run fundraising campaigns. CureGRIN hit a major milestone in early 2023, reaching a total of $1-million raised from GRI families since we launched in 2019!! This is in addition to sponsorship revenue, conference fees and our $615,000 grant from Chan Zuckerberg Initiative.