Who should attend? 

• Families. Meet other families living with GRI Disorder and form bonds that will last a lifetime. Learn from leading researchers doctors and scientists. Participate in research to help advance the search for treatments and cures for your child’s variant. Registration is free for anyone with GRI Disorder and children 12 and under. Childcare will be available for a fee during conference hours. More information coming soon! 

• Researchers and clinicians. Share your work and learn from your peers in the advanced track. Meet people with GRI Disorder and their families. Connect with new collaboration partners in universities, hospitals and biotech. 

• Industry. Learn about GRI Disorder and the unmet need for pharmaceuticals and genetic medicines. Meet people living with GRI Disorder and connect with the leading researchers and clinicians. Note that most sponsorship packages include free or discounted tickets. 

Multiple tracks 

We’re making it easier for every participant to find the right session for you. After the keynotes, there will be multiple streams of sessions. Move back and forth between the tracks to attend the topics that interest you most! 

Awards Gala 

Join us for an opportunity to gather with GRI families and friends to network and celebrate the incredible advancements we are making toward treatments and cures for GRI Disorder. This separately-ticketed event includes food, drink, entertainment, a silent auction and the third annual GRI Patient Impact Awards.  

Accommodations  

Register and reserve your hotel room at Wyndham Grand Orlando Bonnet Creek. As a Walt Disney World® Gateway Hotel, they also offer scheduled shuttle transportation and advance purchase Theme Park tickets. 

Enjoy the tranquility of the Blue Harmony, a picturesque 10-acre lake surrounded by walking paths, five pools, two lazy rivers, miniature golf, and much more. 

We have a block of rooms reserved with a reduced rate per room at $169+tax with a cancellation policy of 48 hours.   

Preliminary Agenda

Detailed agenda coming in early 2025!

Ticket Information:

Children under 12 and People with GRI Disorder (any age) enter free 

Ticket price includes breakfast, lunch and snacks on Friday and Saturday. (Please purchase a ticket for any family members who will be attending sessions and/or eating at the conference.) 

Junior researcher rate applies to grad students and postdocs.