Get Moving for GRI - Massachusetts Fundraising Event

This year the Leblanc’s and Forsyth’s are teaming up together to raise money and awareness for GRI Disorders! We are excited to kick off the 4th Annual Get Moving for GRI Disorders Virtual Walking Fundraising Challenge that will run June 1st through June 30th .

Our combined goal is to raise $10,000 during the month of June that will go directly to the CureGRIN Foundations to help fund research for treatments and hopefully one day a cure for kids like Myles and Oliver living with GRI Disorders. Our families are pledging to walk a combined total of 200 miles!

Check out Myles’s and Oliver’s stories below:
Myles’s Story: Myles - CureGRIN Foundation
Oliver’s Story: Oliver - CureGRIN Foundation

Donations can be made by clicking the orange “Donate” button.

In-Person Fundraising Walk Details

In addition to our month-long fundraising campaign, we are also hosting our first ever in person event. Registration is currently closed; however, even if you didn’t register, we would love to see you there. Donations can be made the day of the event. Walk details are provided below.

Where: Doyle Community Park and Center, 365 Lindell Avenue, Leominster, MA (Boy's & Girl's Club of Leominster, Fitchburg and Gardner)

When: Saturday, June 24th @ 10:30AM; rain date Sunday June 25th @ 10:30AM

Length: The walking path is a 1.5-mile wheelchair accessible loop (a shorter ~0.50-mile loop is also available).

If you pre-registered for the event, event t-shirts can be picked up the day of the event beginning at 9:30AM. T-shirts will ONLY be available for those who pre-registered for the event. Extra t-shirts will NOT be available the day of the event.

If you would like to purchase a t-shirt on your own, please use the links below. Please note we CANNOT guarantee the t-shirt will be in in time for the walk. These shirts will be mailed directly to your preferred address and will NOT be available for pick up the day of the event.

Click here to purchase kid's shirts. 

Click here to purchase additional adult shirts. 

Additional details about the location can be found here: Doyle Community Park, Leominster, MA - The Trustees of Reservations

*Please note restrooms are not located at the facility.

Where does your donated money go?

CureGRIN Foundation invested a total of $652,500 in five research projects this year! These projects focus on gene therapy, testing drugs for GRIN and GRIA Disorders, identifying biomarkers, and using predictive modeling to better understand each variant.

Research projects include:

·        Dr. Wayne Frankel, Columbia University: “RNAi Therapy in a Mouse Model of GRIN2A Developmental and Epileptic Encephalopathy” 

·        Dr. Ian Coombs & Dr. Mark Farrant, University College London: “AMPAR PAMs as potential precision therapies for GRIA loss-of-function”

·        Dr. Derek Bowie, McGill University: “Combination therapy for the treatment of GRIN disorders”

·        Dr. Maggie Kalev, University of Auckland & Dr. Amy Ramsey, University of Toronto: “Blood cells as the source of potential biomarkers for GRIN disorders”  

·        Dr. Dennis Lal, University of Texas & Dr. Steve Traynelis, Emory University: “GRI gene variant pathogenicity & function prediction models for enhanced genetic test interpretation and patient selection for clinical trials”

This investment could not have been possible without the support from hundreds of GRI families who have donated and / or run fundraising campaigns. CureGRIN hit a major milestone in early 2023, reaching a total of $1-million raised from GRI families since we launched in 2019!! This is in addition to sponsorship revenue, conference fees and our $615,000 grant from Chan Zuckerberg Initiative.